{"id":6876,"date":"2025-02-17T21:51:44","date_gmt":"2025-02-17T21:51:44","guid":{"rendered":"https:\/\/site.itshrt.com\/worldnews\/minneapolis-parents-share-journey-of-having-two-sons-with-rare-muscle-wasting-disorder\/"},"modified":"2025-02-17T21:51:44","modified_gmt":"2025-02-17T21:51:44","slug":"minneapolis-parents-share-journey-of-having-two-sons-with-rare-muscle-wasting-disorder","status":"publish","type":"post","link":"https:\/\/site.itshrt.com\/worldnews\/minneapolis-parents-share-journey-of-having-two-sons-with-rare-muscle-wasting-disorder\/","title":{"rendered":"Minneapolis parents share journey of having two sons with rare muscle-wasting disorder"},"content":{"rendered":"<p> <script async src=\"https:\/\/pagead2.googlesyndication.com\/pagead\/js\/adsbygoogle.js?client=ca-pub-6606220950177433\"\r\n     crossorigin=\"anonymous\"><\/script>\r\n<!-- ItShrt World News -->\r\n<ins class=\"adsbygoogle\"\r\n     style=\"display:block\"\r\n     data-ad-client=\"ca-pub-6606220950177433\"\r\n     data-ad-slot=\"1882483372\"\r\n     data-ad-format=\"auto\"\r\n     data-full-width-responsive=\"true\"><\/ins>\r\n<script>\r\n     (adsbygoogle = window.adsbygoogle || []).push({});\r\n<\/script>\r\n<br \/>\n<\/p>\n<div id=\"\">\n<p>Caleb Kasner and his brother Duncan Kasner move around a little differently than average kids.<\/p>\n<p>The two brothers have Duchenne muscular dystrophy \u2014 a rare, inherited muscle-wasting disorder that has no cure.<\/p>\n<p>&#8220;Caleb stopped walking in December of &#8217;23, so a little over a year ago. Duncy stopped walking in April of &#8217;24,&#8221; their mom, Sarah Kasner, said. &#8220;Eventually it just affects all parts of every muscle, heart and lungs included.&#8221;<\/p>\n<p>Their journey with Duchenne started nearly six years ago when both boys were diagnosed within weeks of each other.\u00a0<\/p>\n<p>&#8220;We all just kind of crumbled through the floor and cried because we didn&#8217;t even know what to expect,&#8221; Sarah Kasner said.<\/p>\n<p>The 11- and 9-year-olds are both wheelchair-bound and require 24\/7 care.\u00a0<\/p>\n<p>In the last few months, Dan and Sarah Kasner&#8217;s home has undergone construction, adding an elevator and accessible bathroom. The modifications made the make their ever-changing lives easier.<\/p>\n<p>&#8220;Understanding that nothing is ever going to get better, it&#8217;s only going to keep progressing. Figure out the way to stay strong and keep them smiling as long as we can,&#8221; Dan Kasner said.<\/p>\n<p>Sarah Kasner says they have a huge support network that keeps them going amid the highs and lows.<\/p>\n<p>&#8220;They both have cardiomyopathy, which is scar tissue in their heart,&#8221; Sarah Kasner said. &#8220;More than 50% of their heart is filled with that.&#8221;<\/p>\n<p>There&#8217;s progress in the fight and a new gene therapy shows positive signs of slowing the disease&#8217;s progression. Unfortunately, it is not an option for the Kasner boys.<\/p>\n<p>&#8220;Let&#8217;s not stop the fight because I&#8217;m not going to stop even when they pass. I know this is a curable, fixable disease,&#8221; Sarah Kasner said.<\/p>\n<p>With a future unknown, the Kasners choose to love and live.<\/p>\n<p>&#8220;It&#8217;s so cliche but just like living in the present moment with what we have,&#8221; Sarah Kasner said.<\/p>\n<p>A huge resource for the Kasners is <a href=\"https:\/\/cureduchenne.org\/\" target=\"_blank\" rel=\"nofollow noopener\">Cure Duchenne<\/a>, a global nonprofit  that works to fund research towards improving and extending the lives of everyone affected by the disorder.<\/p>\n<p>The organization also hosts conventions each year where the family can connect with others families facing the same disease.<\/p>\n<p><a href=\"https:\/\/kasners-kick-duchenne.square.site\/\" target=\"_blank\" rel=\"nofollow noopener\">The Kasners share a lot of their journey online with their &#8220;Kasners Kick Duchenne&#8221; page<\/a>.<\/p>\n<p>    <!-- data-recirc-source=\"queryly\" --><\/p>\n<aside class=\"component list recirculation component--type-recirculation \">\n<p><h3 class=\"component__title\">More from CBS News<\/h3>\n<\/p>\n<\/aside>\n<p><!-- tags --><\/p>\n<div class=\"content-author\">\n      <a href=\"https:\/\/www.cbsnews.com\/team\/beret-leone\/\" class=\"content-author__name\" data-invalid-url-rewritten-http=\"\">Beret Leone<\/a><\/p>\n<div class=\"content-author__bio\">\n<div class=\"content-author__image\">\n            <a href=\"https:\/\/www.cbsnews.com\/team\/beret-leone\/\" data-invalid-url-rewritten-http=\"\"><br \/>\n              <span class=\"img \"><img alt=\"web-beret-leone-1.jpg \" height=\"80\" width=\"80\" class=\" lazyload\" srcset=\"https:\/\/assets1.cbsnewsstatic.com\/hub\/i\/r\/2024\/11\/26\/57a4a41f-4c17-41aa-b461-39d7cbcf0770\/thumbnail\/80x80\/3df1647fbb059fb3ab1d4139ca68d3cd\/web-beret-leone-1.jpg?v=f303dc12868a012283443d8b9123e5fe 1x, https:\/\/assets2.cbsnewsstatic.com\/hub\/i\/r\/2024\/11\/26\/57a4a41f-4c17-41aa-b461-39d7cbcf0770\/thumbnail\/160x160\/ef05936b7c5ae3fc623c78f8beea9f42\/web-beret-leone-1.jpg?v=f303dc12868a012283443d8b9123e5fe 2x\"\/><\/span><br \/>\n            <\/a>\n          <\/div>\n<div class=\"content-author__full-information\">\n<p class=\"content-author__text\">Beret Leone is a native Minnesotan who joined the WCCO team as a reporter in September 2022 &#8211; and she&#8217;s thrilled be back home in the Twin Cities! Beret grew up in Chaska and graduated from Bethel University.<\/p>\n<\/p><\/div>\n<\/p><\/div>\n<\/p><\/div>\n<\/p><\/div>\n<p><script async src=\"https:\/\/pagead2.googlesyndication.com\/pagead\/js\/adsbygoogle.js?client=ca-pub-6606220950177433\"\r\n     crossorigin=\"anonymous\"><\/script>\r\n<!-- ItShrt World News -->\r\n<ins class=\"adsbygoogle\"\r\n     style=\"display:block\"\r\n     data-ad-client=\"ca-pub-6606220950177433\"\r\n     data-ad-slot=\"1882483372\"\r\n     data-ad-format=\"auto\"\r\n     data-full-width-responsive=\"true\"><\/ins>\r\n<script>\r\n     (adsbygoogle = window.adsbygoogle || []).push({});\r\n<\/script>\r\n<br \/>\n<br \/><a href=\"https:\/\/www.cbsnews.com\/minnesota\/news\/kasners-kick-duchennes-rare-muslce-conditon\/\">Source link <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Caleb Kasner and his brother Duncan Kasner move around a little differently than average kids. The two brothers have Duchenne<\/p>\n","protected":false},"author":1,"featured_media":6877,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[36],"tags":[2032,2467],"class_list":["post-6876","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health-2","tag-disabilities","tag-minneapolis"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Minneapolis parents share journey of having two sons with rare muscle-wasting disorder - World News<\/title>\n<meta name=\"description\" content=\"Caleb Kasner and his brother Duncan Kasner move around a little differently than average kids. The two brothers have Duchenne muscular dystrophy &mdash; a rare, inherited muscle-wasting disorder that has no cure.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/site.itshrt.com\/worldnews\/minneapolis-parents-share-journey-of-having-two-sons-with-rare-muscle-wasting-disorder\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Minneapolis parents share journey of having two sons with rare muscle-wasting disorder - World News\" \/>\n<meta property=\"og:description\" content=\"Caleb Kasner and his brother Duncan Kasner move around a little differently than average kids. 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